It has been almost four days since our last post. It has also been a life changing experience for Rachelle, Addyson, Aubree, myself and our family. We would first like to start out by saying we could not be more please with the level of care, compassion and outreach we have received over the past four days from the employees at Helen DeVos Children’s Hospital and everyone we connect with online and in our life’s. This experience has made us both appreciate the level of care we can receive her in West Michigan and the charities like Ronald McDonald House that we hear about all the time, but never really think about.
Now on to Aubree. Her progress has been amazing and we give credit for being such a brave little girl. On Monday, she was steady at the same level as we had seen her Sunday night. She was still connected to the CPAP and IV. She was taking in 40% oxygen through her CPAP. She was not allowed any milk until her breathing was more regulated. We spent most of the day at the hospital taking every chance we got to hold her. It was not the easiest task in the world since she had tubes and wires hooked up to her. Luckily for use the have a very comfy chair that maneuvers around and the nurses are more than willing to help get her out of the warmer. We also got good news Monday night that she could be off the CPAP sometime on Tuesday if everything went well. They still were doing chest x-rays and labs to make sure she was ok. We are also able to call a number that connects with right with her nurse in the NICU and we have special number we give them before they will provide us with information. We both find it comforting to be able to check on her anytime of the day if we are not there.
We called Tuesday morning for an update on her status. The doctors informed us that her right lung was clear and good, but her left lung was now showing a small pneumothorax. This was causing her breathing to remain elevated and there was a chance they may have to go in with a needle and extract some of the air. She was also having some low sodium issues and they had to administer her some medicine to slow weight gain. We visited Aubree for a few hours that morning before heading back home to pick up Addyson and take care of a few things. We had never seen Addyson so excited to see us as we did that day! While we were back home, the doctor called with an update informing us they had to extract some of the air that was trapped to help her breathing. It is a scary thought to know that you are not there by your child’s side when something like that happens.
Upon returning we were able to bring Addyson up to the NICU to visit her little baby sister. She was well aware that we are going to visit “sissy” as she prefers to call her. I am not sure, but i think she was slightly scared to see her little sissy hooked up to all those cords and tubes. They were also able to remove the CPAP and allow Aubree to breathe normal room oxygen. She was also able to start feeding on Tuesday with a feeding tube! They started her out a very small amounts since she was receiving some fluid from the IV still.
Today, Wednesday, she had a few visitors! Rachelle’s mother, father and sister all came in the morning to visit with little Aubree. She was able visit with them for a little while, but need some quiet time during her feeding and care period. Lucky for us Grandma was staying the night to help care for Addyson so Rachelle and myself can spend time with Aubree as well. Today she also tried to feed off a bottle. The Nurse gave her an “A” for effort, but she was unable to finish the bottle and had to have the rest through her tube. This was mostly becuase her respiratory rate being unpredictable and not staying below 60. She has also seemed to start peaking her eyes open around 8 p.m. the past couple nights. It is such a wonderful sight to see her watching us and we can now see her little blue eyes! We have not held her as much today because they have increased her feeding amount and we do not want to disturb her stomach too much.
The best part for us on a daily basis is care time. During this time they weight Aubree, take her temperature, change her sheets and diaper, measure her and feed her. It gives us a little opportunity to be involved with her care and do somethings most parents take for granted on a newborn. Tonight I (dad) am staying in the NICU all night with my baby girl for a little alone time. I have informed the nurse to attempt to wake me for all her care times. It is nice to sit here and just watch my little miracle sleeping and hope that soon we can do this at home.
We would like to close this post tonight with a little photo time of our baby at Helen DeVos. Enjoy!
Rachelle reading to Aubree
Dad changing his first diaper!
I see you!
Aubree on Wednesday, February 22, 2012